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báo cáo khoa học:" Uncontrolled asthma: assessing quality of life and productivity of children and their caregivers using a cross-sectional Internet-based survey"

Tuyển tập báo cáo các nghiên cứu khoa học quốc tế ngành y học dành cho các bạn tham khảo đề tài: Uncontrolled asthma: assessing quality of life and productivity of children and their caregivers using a cross-sectional Internet-based survey | Dean et al. Health and Quality of Life Outcomes 2010 8 96 http www.hqlo.eom content 8 1 96 HEALTH AND QUALITY of life outcomes RESEARCH Open Access Uncontrolled asthma assessing quality of life and productivity of children and their caregivers using a cross-sectional Internet-based survey 1 1 2 1 3 4 Bonnie B Dean Brian C Calimlim Patricia Sacco Daniel Aguilar Robert Maykut David Tinkelman Abstract Background Results of a national survey of asthmatic children that evaluated management goals established in 2004 by the National Asthma Education and Prevention Program NAEPP indicated that asthma symptom control fell short on nearly every goal. Methods An Internet-based survey was administered to adult caregivers of children aged 6-12 years with moderate to severe asthma. Asthma was categorized as uncontrolled when the caregiver reported pre-specified criteria for daytime symptoms nighttime awakening activity limitation or rescue medication based on the NAEPP guidelines. Children s health-related quality of life HRQOL and caregivers quality of life QOL were assessed using the Child Health Questionnaire Parent Form 28 CHQ-PF28 and caregiver s work productivity using a modified Work Productivity and Activity Impairment Questionnaire. Children with uncontrolled vs. controlled asthma were compared. Results 360 caregivers of children with uncontrolled asthma and 113 of children with controlled asthma completed the survey. Children with uncontrolled asthma had significantly lower CHQ-PF28 physical mean 38.1 vs 49.8 uncontrolled vs controlled respectively and psychosocial 48.2 vs 53.8 summary measure scores. They were more likely to miss school 5.5 vs 2.2 days arrive late or leave early 26.7 vs 7.1 miss school-related activities 40.6 vs 6.2 use a rescue inhaler at school 64.2 vs 31.0 and visit the health office or school nurse 22.5 vs 8.8 . Caregivers of children with uncontrolled asthma reported significantly greater work and activity impairment and lower QOL for emotional .