Tuyển tập báo cáo các nghiên cứu khoa học quốc tế ngành y học dành cho các bạn tham khảo đề tài: Developing and implementing an institute-wide data sharing policy | Dyke and Hubbard Genome Medicine 2011 3 60 http content 3 9 60 w Genome Medicine CORRESPONDENCE L Developing and implementing an institute-wide data sharing policy Stephanie OM Dyke and Tim JP Hubbard Abstract The Wellcome Trust Sanger Institute has a strong reputation for prepublication data sharing as a result of its policy of rapid release of genome sequence data and particularly through its contribution to the Human Genome Project. The practicalities of broad data sharing remain largely uncharted especially to cover the wide range of data types currently produced by genomic studies and to adequately address ethical issues. This paper describes the processes and challenges involved in implementing a data sharing policy on an institute-wide scale. This includes questions of governance practical aspects of applying principles to diverse experimental contexts building enabling systems and infrastructure incentives and collaborative issues. Introduction The Wellcome Trust Sanger Institute WTSI played an important role in the international public effort to sequence the human genome the Human Genome Project HGP which has become a symbol of the benefits of policies on early release of scientific data. The HGP data release policy known as the Bermuda Agreement was agreed to in 1996 by a group of genomic scientists and funders that included leaders from WTSI and the Wellcome Trust and built on successful practices that had been in operation in other fields of genetics for example the Caenorhabditis elegans Genome Project 1-3 . Other WTSI sequencing projects whose structure easily fits the specifics of the HGP data release policy followed suit and adopted similar practices that rapidly became WTSI policy 4 . Large-scale international collaborations such as the SNP Consortium 5 Mouse Genome Sequencing Consortium 6 and International Correspondence th@ Wellcome Trust Sanger Institute Wellcome Trust Genome Campus Hinxton Cambridge
