Parents with Parkinson’s agree that you shouldn’t try to hide what you’re going through from your family. Doing so can backfire on you. “It used to be that when I’d have my ‘off’ periods, I would go into my room rather than subject my family to it,” says Joan S. “That was a big mistake, because they needed to see what I was going through in order to understand.” Greg H. has had two successful rounds of DBS surgery since his diagnosis in 1990. * He says his kids have become very sensitive to his needs when he goes in for what he calls his annual “stimulator appreciation day” where the.
