Tuyển tập các báo cáo nghiên cứu về y học được đăng trên tạp chí y học General Psychiatry cung cấp cho các bạn kiến thức về ngành y đề tài: Validating English- and Spanish-language patient-reported outcome measures in underserved patients with rheumatic disease. | Wallen et al. Arthritis Research Therapy 2011 13 R1 http content 13 1 R1 RESEARCH ARTICLE Open Access Validating English- and Spanish-language patient-reported outcome measures in underserved patients with rheumatic disease Gwenyth R Wallen 1 Kimberly R Middleton1 Migdalia V Rivera-Goba1 Barbara B Mittleman2 Abstract Introduction Rheumatic diseases are among the most common and debilitating health problems in the United States. These diseases are chronic can result in severe decrements of physical and psychosocial functioning and affect patients overall quality of life. A consensus regarding the best patient outcomes to be measured in randomized controlled trials and prospective natural history studies is essential to provide best estimates of efficacy and safety of interventions across diverse patient populations. Methods Face-to-face English- and Spanish-language cognitive interviews were conducted among urban Hispanic and African American patients with rheumatic disease to develop a questionnaire booklet. Six measures validating patient-reported outcomes were included the Arthritis Self-Efficacy Scale the Stanford Health Assessment Questionnaire Disability Index the Wong-Baker Faces Pain Scale the Short Acculturation Scale the Center for Epidemiologic Studies Depression Scale and the Inventory of Complementary and Alternative Medicine Practices. A sample of patients n 15 attending the National Institute of Arthritis and Musculoskeletal and Skin Diseases Community Health Center participated in the initial interviews. Revised measures were further tested for reliability in a separate sample of patients n 109 upon enrollment at the health center. Results Cognitive interviews provided feedback for questionnaire modifications and methods to enhance content validity and data quality including discarding redundant questions providing visual aids and concrete examples when appropriate and increasing the use of racially and ethnically concordant .
