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báo cáo khoa học:" How do children at special schools and their parents perceive their HRQoL compared to children at open schools?"

Tuyển tập báo cáo các nghiên cứu khoa học quốc tế ngành y học dành cho các bạn tham khảo đề tài: How do children at special schools and their parents perceive their HRQoL compared to children at open schools? | Jelsma and Ramma Health and Quality of Life Outcomes 2010 8 72 http www.hqlo.eom content 8 1 72 HEALTH AND QUALITY OF LIFE OUTCOMES RESEARCH Open Access How do children at special schools and their parents perceive their HRQoL compared to children at open schools Jennifer Jelsma 1 Lebogang Ramma2 Abstract Background There has been some debate in the past as to who should determine values for different health states for economic evaluation. The aim of this study was to compare the Health Related Quality of Life HRQoL in children attending open schools OS and children with disabilities attending a special school SS and their parents in Cape Town South Africa. Methods The EQ-5D-Y and a proxy version were administered to the children and their parents were requested to fill in the EQ-5D-Y proxy version without consultation with their children on the same day. Results A response rate of over 20 resulted in 567 sets of child adult responses from OS children and 61 responses from SS children. Children with special needs reported more problems in the Mobility and Looking after myself domains but their scores with regard to Doing usual activities Pain or discomfort and Worried sad or unhappy were similar to their typically developing counterparts. The mean Visual Analogue Scale VAS score of SS children was 88.4 SD18.3 range 40-100 which was not different to the mean score of the OS respondents 87.9 SD16.5 range 5-100 . The association between adult and child scores was fair to moderate in the domains. The correlations in VAS scores between Open Schools children and female care-givers scores significant but low r .33 p .001 and insignificant between Special School children and adult r .16 p .24 . Discussion It would appear that children with disabilities do not perceive their HRQoL to be worse than their able bodied counterparts although they do recognise their limitations in the domains of Mobility and Doing usual activities . Conclusions This finding lends weight to the .