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báo cáo khoa học:" Implementing patient reported outcome measures (PROMs) in palliative care - users’ cry for help"

Tuyển tập báo cáo các nghiên cứu khoa học quốc tế ngành y học dành cho các bạn tham khảo đề tài: Implementing patient reported outcome measures (PROMs) in palliative care - users’ cry for help | Bausewein et al. Health and Quality of Life Outcomes 2011 9 27 http www.hqlo.eom content 9 1 27 HEALTH AND QUALITY OF LIFE OUTCOMES RESEARCH Open Access Implementing patient reported outcome measures PROMs in palliative care - users cry for help 1.2 1.2 1 3 4 Claudia Bausewein 1 Steffen T Simon 1 Hamid Benalia Julia Downing Faith N Mwangi-Powell Barbara A Daveson1 Richard Harding1 and Irene J Higginson1 for PRISMA Abstract Background Patient-reported outcome measurement PROM plays an increasingly important role in palliative care. A variety of measures exists and is used in clinical care audit and research. However little is known about professionals views using these measures. The aim of this study is to describe the use and experiences of palliative care professionals with outcome measures. Methods A web-based online survey was conducted in Europe and Africa. Professionals working in clinical care audit and research in palliative care were invited to the survey via national palliative care associations and various databases. Invitation e-mails were sent with a link to the questionnaire. Results Overall participation rate 42 663 1592 overall completion rate 59 392 663 . The majority of respondents were female 63.4 mean age 46 years SD 9 . 68.1 respondents from Europe and 73.3 from Africa had experiences with outcome measures in palliative care. Non-users reported time constraints burden lack of training and guidance as main reasons. In clinical care audit assessment of patients situation monitoring changes and evaluation of services were main reasons for use. Choice of OMs for research was influenced by validity of the instrument in palliative care and comparability with international literature. Main problems were related to patient characteristics staff and outcome measures. Participants expressed the need for more guidance and training in the use of PROMs. Conclusions Professionals need more support for the use and implementation of PROMs in clinical practice .