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The Ethics and Governance of Human Genetic Databases European Perspectives Part 3

Cuộc khảo sát cũng cho thấy sự ủng hộ mạnh mẽ công để áp dụng những khám phá này, trong điều khoản của cả hai bệnh có thể chẩn đoán thông qua thử nghiệm di truyền và tương ứng "sửa chữa". | 48 Kulliki Korts their remarkably high expectations of genetic research. More than 90 of the respondents agree or rather agree to the statement that the development of gene technology means that many illnesses can be cured. But the survey also indicates strong public support for applying these discoveries in terms of both diagnosing possible illnesses through genetic testing and making respective corrections . Almost 90 of the respondents are in agreement with the statement that people should be encouraged to be tested in young adulthood for disorders that develop in middle age or later in life. Almost as many 80 also agree that parents have a right to ask for their child to be tested for genetic disorders that develop in adulthood and 86 that genetic information may be used by parents to decide if children with certain disabling conditions are born. Fewer but still a considerable majority 68 consider that couples who are at risk of having a child with a serious genetic disorder should be discouraged from having children of their own. Though these responses might not reflect people s own potential behaviour they indicate a potential for rather strong social pressure for making use of such preventive measures once these become more widely available especially taking into account that Estonia has only lately abandoned the Soviet pattern of dealing with disability mainly via exclusion in special institutions rather than giving support and counselling to parents to cope with the situation. Similarly one can perceive placing social welfare public safety above personal privacy in the willingness of three quarters of the respondents to allow the police access to the gene bank during criminal investigations which is in contradiction with the current legislation forbidding third parties any access to the database. This is where the attitudes of the Estonian public which are similar to those of other post-Communist countries diverge most noticeably from the results of the .