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báo cáo hóa học: " Health-related quality of life in children with cystic fibrosis: validation of the German CFQ-R"

Tuyển tập các báo cáo nghiên cứu về sinh học được đăng trên tạp chí hóa học quốc tế đề tài : Health-related quality of life in children with cystic fibrosis: validation of the German CFQ-R | Health and Quality of Life Outcomes BioMed Central Open Access Health-related quality of life in children with cystic fibrosis validation of the German CFQ-R Anne Schmidt 1 Kerstin Wenninger2 Nadja Niemann3 Ulrich Wahn1 and Doris Staab1 Address Department of Paediatric Pulmonology and Immunology Charité Universitatsmedizin Berlin Campus Virchow Klinikum Augustenburger Platz 1 13353 Berlin Germany 2Department of Paediatric Haematology-Oncology University of Freiburg Mathildenstrasse 1 79106 Freiburg Germany and 3Centre for Quality Management in Health Care Berliner Allee 20 30175 Hannover Germany Email Anne Schmidt - anne.schmidt@charite.de Kerstin Wenninger - kerstinwenninger@web.de Nadja Niemann - nadja.niemann@zq-aekn.de Ulrich Wahn - ulrich.wahn@charite.de Doris Staab - doris.staab@charite.de Corresponding author Published 2 December 2009 Received 16 April 2009 Health and Quality of Life Outcomes 2009 7 97 doi 10.1186 1477-7525-7-97 Accepted 2 December 2009 This article is available from http www.hqlo.cOm content 7 1 97 2009 Schmidt et al licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License http creativecommons.org licenses by 2.0 which permits unrestricted use distribution and reproduction in any medium provided the original work is properly cited. Abstract Background This study evaluates the psychometric properties of the Child and Parent versions of the German CFQ-R Cystic Fibrosis Questionnaire Revised a disease-specific measure of Health-Related Quality of Life HRQoL in children with cystic fibrosis CF . Self-Rating is combined with proxy-rating by parents in the use of the questionnaire. Methods 136 children with CF 6 - 13 years and their parents were recruited to evaluate internal consistency Cronbach s a and validity 20 children and parents to examine reproducibility ICC . Results Cronbach s a is high in all but two dimensions of the Child version a 0.23-0.77 and for all .